Privacy Policy
Whether you use Breast Cancer Trial Search as a Guest or Member, we consider it our utmost responsibility
to protect your privacy. We will never sell or share your personal health information without your explicit permission.
As a Guest, you can use Breast Cancer Trial Search (BCTS) on a one-time basis; when you leave, we will no
longer have access to your data. Members are BCTS users who save their Health History to our secure
servers. As a Member you can update your Health History. BCTS Members have complete control over what is
contained in their Health History and with whom it can be shared. BCTS will never share your personal
health information with any individual or organization without your explicit permission. By personal
health information, we mean any information that is protected by the U.S. Government Medical Privacy
Rule (HIPAA). This includes your name, email address, mailing address, telephone number, and date of
birth. Although BCTS is not explicitly covered by HIPAA, we adhere to its guidelines.
To help us learn more about the individuals who are using our service, BCTS creates summary reports by
combining non-identifiable data - such as tumor type - from your record with that of other patients. Our
summary reports are for BCTS use only and will not be shared with any individual or organization.
BCTS Members can delete their personal Health History from BCTS at any time. Your personal data will be
removed from our system when you delete your profile.
Privacy Safeguards for Breast Cancer Trial Search Members with Online Health Histories
Password-protected records: When you save your Health History for the first time, we will ask you to
select a user name and password. From then on, only an individual with that user name and password can
access your record.
BCTS Access to User Health History: BCTS staff do not have routine access to user Health Histories.
Occasionally, however, BCTS staff may need to access a user record. This will only occur if staff need to
contact a user.
Privacy Safeguards for Guests
A "guest" is someone that uses the matching tool without saving his/her information under a user name
and password. If you use BCTS as a guest your personal health history will be deleted when you end your
session.
Additional Privacy Concerns for Breast Cancer Trial Search Members and Guests
Electronic Security: Our website follows the security guidelines of the United States Health Insurance
Portability and Accountability Act of 1996 (HIPAA). All Breast Cancer Trial Search data is transmitted,
stored, and processed in a secure environment.
Summary Data: Breast Cancer Trial Search pools non-identifiable information from Health History records
(such as tumor type and treatment history) to create summary reports that we use to improve our service.
Our summary reports do not contain data that could be traced back to you personally. We will not sell or
share summary reports with any individual or organization.
